The NIH’s AllOfUs research hub is a large, diverse dataset compiling data on a range of many different health-related topics from many different sources. All U.S. citizens and their healthcare providers are invited to upload data to the AllofUs research hub. Currently, over 300,000 participants are enrolled, with a future goal of one million participants. Data are not considered nationally representative.
Study design: Convenience sampling
Data collection: Online surveys; genomic sequencing; Electronic Health Record (EHR) extraction; Fitbit data; physical measurements
Measures of depression: Has a doctor or health care provider ever told you that you have or had any of the following mental health and substance use conditions: Depression? In general, how would you rate your mental health, including your mood and your ability to think? In the past 7 days, how often have you been bothered by emotional problems such as feeling anxious, depressed or irritable?
Other measures: Demographics; general health; lifestyle; chronic health conditions; family health history; healthcare access & utilization; genomic variants; physical measurements; Fitbit readings; Insurance billing & doctor’s visits; medication use; Lab testing; Surgical history
Notable publications using this data: Publications will continue to be added as they become available.
Notes: University of Michigan has a current data use agreement to access AllofUs data, though separate registration is required, including a 1-hour mandatory training and agreement with a Code of Conduct. Contact our team if you are interested in using this dataset, and we can assist you with access.